Support and Grants

There are many support groups, charities and websites offering help and support to sufferers of fibromyalgia and their Carers.

The list below names just a few of the places people can turn to for help:

  • Fibromyalgia Warriors UK Support Group – a Facebook group with thousands of members affected by fibromyalgia, who share opinions, experiences and stories.
  • Action on Pain – a UK charity campaigning for people living with chronic pain, which provides a helpline and suggestions of ways to deal with pain.
  • Away with Pain – a UK charity supporting people who live with painful health conditions such as fibromyalgia, which provides a wealth of information about pain and how to manage it, including a pain tool kit and personal stories.
  • Fibromyalgia Action UK – a UK based charity supporting people affected by fibromyalgia through online information about the condition, as well as providing a helpline, benefit support, online forum, and fundraising activities.
  • Fibromyalgia Syndrome – a resource website featuring many articles about lots of aspects of living with fibromyalgia such as in-depth information about symptoms, as well as case studies.
  • NHS – source of official medical information in the UK, including information on fibromyalgia causes, symptoms and treatments.
  • Pain Concern – a UK charity supporting people in pain and providing online information about living with pain, benefits, alternative therapies, how pain affects relationships, and much more including a helpline.
  • UK Fibromyalgia – lots of online information about fibromyalgia as well as a forum, Facebook group and magazine.

And not forgetting our very own group

  • Fibromyalgia Friends Together – As the name indicates we are a very friendly group of people that meet every 3rd Thursday of the month at Ulverscroft Manor in Leicestershire where we are here to listen and help people come to terms with their illness. You will be made most welcome. We also have a Facebook page.

Fibromyalgia – A carers perspective

First, I would like to say I feel sorry for anyone that suffers with Fibromyalgia. I don’t know how you cope with the pain, I couldn’t.

As your carer whether it be a husband, wife, family member or even a friend we are your support, your first point of contact and even the first person you moan at when you don’t feel at your best, but remember we still love you and do anything to help you.

As a carer you live through the pain and suffering with your partner. Every day I can look at my wife first thing in the morning and I know what sort of day I am going to have from the expression on her face. Trust me we suffer with you. As a carer you must learn that the speed of your life is governed by the speed of their life.

There are not many people in my wife’s life that really see her at her worst, she copes with the pain and just gets on with life.

I feel frustrated not being able to help someone that is in so much pain and there is nothing that can be done to cure her only take medication to control and help manage the pain.

Because a sufferer with Fibromyalgia learns to cope with high levels of pain, and become very good at disguising the fact that they are suffering, tends to lead a person that doesn’t know the tell tail signs of this person into thinking “is there really anything wrong with this person”? Which can be a very frustrating statement to hear for both sufferers of Fibromyalgia and there Carers.

Grants

Here is a list of grants avaliable for people with Fibromyalgia and other disabilities.   

The Disabled Garderners Trust

The Disabled Garderners Trust is there to help gardening more accessible.  They have a simple grant process, and funds things like raised beds, disabled friendly gardening tools and paths for wheelchairs.  You can find out more  from their  website www.gardeningfordisabledtrust.org.uk

The Hospital Saturday Fund

This fund seeks to suport people with a medical condition or disability who would benefit from the purchase of equipment or treatments.  They provide of up to £2,000, however, they like to see evidence of where you have applied to another organsation to part fund.  Examples of things they woud fund include reflexology, massages, specialist beds, wheelchairs and hearing aids.  You cannot apply directly and must apply through an organsation such as your local Citizens Advice Bureau.  Their website is at www.hospitalsaturdayfund.org/apply-for-a-grant 

Leonard Cheshire

The charity Leonard Cheshire, are working with disabled people to improve digital skills and access, through providing free refurbished equipment, such as PCs and laptops.  They also fund special equipment that a disabled person may require, including speech to text recognition software.  If you need it they also have free online courses in English and Maths.  Find out more for their website at

www.leonardcheshire.org/what-we-do/learning-and-lifestyle/learn-technology/digital-home

 

Disclaimer

All the content within these pages has been sourced through a variety of online medical and alternative therapy information sources, and at the time of publishing we believe them to be true statements.